National Expand The Swallows Head & Neck Cancer Support Charity Business First Lancaster House Amy Johnson Way Blackpool FY4 2RP [email protected] Support Line 07504 725059 Mouth Cancer Foundation Head Office: 020 8940 5680 Patient carer advice line: 01924 950950 [email protected] The National Association of Laryngectomee Clubs c/o The Ludo Press Ltd Unit 18, Wimbledon Stadium Business Centre Riverside Road London SW17 0BA [email protected] / 0207 730 8585 View all of their regional support groups here. Macmillan Head and Neck Cancer Forum Joining this online forum requires creating an online account with Macmillan. https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum Macmillan Support Line 0808 808 0000 Heads2gether www.heads2gether.net Changing Faces Support line 0300 0120275 [email protected] www.changingfaces.org.uk Headstart Head & Neck Cancer Support headstartcancersupport.org.uk [email protected]
Incidences of mouth cancer Expand The latest figures show that 10,825 people in the UK are diagnosed with mouth cancer a year. This means that one person in the UK is diagnosed with mouth cancer every hour. Mouth cancer is the 10th most common cancer in the UK. In men, mouth cancer is the 9th most common cancer in the UK, with around 7.206 new cases a year. In women, mouth cancer is the 15th most common cancer in the UK, with around 3,619 new cases a year. Most mouth cancers occur in the tongue. These make up around 31% of cases for men and women. Mouth cancer is strongly associated with age. More than 81% mouth cancers are diagnosed in those over the age of 55.
Mortality Expand An estimated 3,637 people in the United Kingdom lose their life to mouth cancer every year. That's 10 people every day. Mouth cancer is the 17th most common cause of cancer death in the UK, accounting for around 2% of all cancers deaths. In men, mouth cancer in the 16th most common cause of cancer death in the UK, with around 2,409 deaths. In women, mouth cancer is the 18th most common cause of cancer death in the UK, with around 1,228 deaths. The most deadly mouth cancer is cancer of the tongue, accounting for over a third (30%) of all mouth cancer deaths last year. Men are far more likely to die from mouth cancer than women. Men account for 70% of mouth cancer deaths compared to only 30% for women. Deaths from mouth cancer are heavily linked to the stage of diagnosis.
Mouth cancer risk factors Expand Lifetime risk The estimated lifetime risk of being diagnosed with mouth cancer is around 1 in 55 (2%) for males, and 1 in 108 (less than 1%) for females born after 1960 in the UK. Smoking Around two-in-three (66%) mouth cancers are linked to smoking. The risk of being diagnosed with mouth cancer for a smoker is almost double (91%) that of a never-smoker. Mouth cancer risk is 35% lower in ex-smokers who quit 1-4 years previously, compared with current smokers. Mouth cancer risk is no higher in ex-smokers who quit 20+ years previously, compared with never-smokers. Mouth cancer risk is around 3 times higher in bidi smokers compared with bidi never-smokers. Smokeless tobacco Mouth cancer risk is up to four and a half times higher in smokeless tobacco users. This risk may be higher in females and for users of chewing types of smokeless tobacco. Alcohol Those who drink more than 10 units of alcohol a week could be increasing the risk of mouth cancer by 81%. Drinking alcohol to excess is linked to around a third (34%) of all mouth cancers. If you both smoke and drink to excess it can increase your risk of developing mouth cancer can be tripple. Human papillomavirus (HPV) The human papillomavirus (HPV) type-16 and 18 are linked to around three in four (73%) oropharyngeal cancers and more than one in ten (12%) oral cavity and hypopharynx cancers. Environmental tobacco smoke (ETS) Mouth cancer risk is 87% higher in never-smokers who have ever been exposed to ETS at home or work, compared with unexposed never-smokers. Mouth cancer risk is more than twice higher in never-smokers exposed to ETS at home or work for 15+ years, compared with unexposed never-smokers. Infections Mouth cancer risk is around twice higher in people with HIV/AIDS, compared with the general population. Organ transplant Mouth cancer risk is 2-5 times higher in organ transplant recipients compared with the general population. Family history Mouth cancer risk could be up to 70% higher in people with a family (particularly sibling) history of mouth cancer, versus those without such history, a pooled analysis showed.
Survival Expand Spotting mouth cancer early is crucial for beating the disease. Early detection boosts our chances of survival from 50% to 90%. Depending on where the cancer strikes, the one-year survival rate for mouth cancer is between 60% and 84%. Survival rate after 10 years drops to between 18% and 57%. Women have better one-year, five-year and 10-year survival rates compared to men. Hypopharyngeal cancer has the lowest survival rate standing at just over 60% after one year and around 18% after 10 years. Oropharyngeal cancer has the highest survival rate standing at just over 84% after one year and nearly 57% after 10 years. Tongue cancer 80% of men survive tongue cancer for at least one year. This is predicted to fall to 60% surviving for five years or more. Survival for women is similar with 81% surviving for one year or more, and 62% predicted to survive for at least five years. The ten year survival rate for tongue cancer is 51% in men and 54% in women. Oropharyngeal cancer 84% of men survive oropharyngeal cancer for at least one year, and this is predicted to fall to 66% surviving for five years or more. Survival for women is similar with 84% surviving for one year or more, and 66% predicted to survive for at least five years The ten year survival rate for oropharyngeal cancer is 57% in men and 59% in women. Oral cavity cancer 78% of men survive oral cavity cancer for at least one year, and this is predicted to fall to 54% surviving for five years or more. Survival for women is similar to men one year after diagnosis with 79% surviving for one year or more and higher than men at five years after diagnosis with 60% predicted to survive for at least five years. The ten year survival rate for oral cavity cancer is 42%% in men and 50% in women. Hypopharyngeal cancer 60% of men survive hypopharyngeal cancer for at least one year, and this is predicted to fall to 27% surviving for five years. Survival for women is similar with 61% surviving for one year or more, and 30% predicted to survive for at least five years. The ten year survival rate for hypopharyngeal cavity cancer is 18% in men and 23% in women.
Trends over time Expand In the last ten years, cases have risen by 38% in the UK. Rates of mouth cancer has increased by an astonishing 133% over the last 20 years (England data only). The latest research says that deaths from mouth cancer in the UK have increased by 5% compared to last year. Sadly, the number of people losing their life to mouth cancer has also grown. The latest research says that deaths from mouth cancer have increased by 52% compared with ten years’ ago.
I need help promoting my Mouth Cancer Action event. Can you help me? Expand Yes. Our team is on hand to help you ensure your fundraising is as successful as it can be. From providing posters, sponsorship forms, social media and press release templates, help is on hand to help spread awareness. Here are our quick tips to making your event the talk of the town... Use local media: Local newsletters, daily papers, radio stations and television in your area are always keen on covering events for a good cause, so make them aware of the details of your event in good time! Some ingenious advertising of your own can also increase your audience. Hand out flyers: A cheap, effective way of promoting your event is to hand out flyers a few weeks in advance. Make them as interesting as possible: include all the key information such as the date, venue and type of event you have planned. Make sure people know about your event! Smile for the camera: Think about photo opportunities – local papers love to use fun, entertaining photos as a basis for covering of local events. Book a photographer, because a good photo is a great way of generating media coverage and makes an excellent memento of your successful event. Write a press release: Why not send out a press release too? It’s an excellent means of promoting a good oral healthcare message through your local media outlets to a large, local audience. Go social: Post about your event on social media. Create a fundraising page on our website and ask people to share it. You might be surprised about far far and wide it goes. Need more of a helping hand? That’s no problem. Contact our dedicated PR team who are experts in making some noise around events. Together we can help guide you on your fundraising journey.
How should I raise and collect funds from friends, family and supporters? Expand You can set up a personalised online by creating your very own donation page. This offers a really easy way for people to sponsor you and add messages of support to spur you on when the training gets tough. When creating your own fundraising page you can select where your money goes. You can choose to donate it to the Oral Health Foundation in general, to help us achieve all our charitable objectives, or select one of our rotating appeals, which help go towards a specific cause. You can then share your page on Facebook and Twitter to get the word out to all your friends and family. If you’re looking a bit low tech, we can also help support you with collection tins to collect some cash. You can also download and print off one of our sponsorship forms. More information: Create a fundraising page Sponsorship form for Mouth Cancer Action Contact our press team
How do you use the funds raised for Mouth Cancer Action? Expand Funds raised for our Mouth Cancer Action Appeal will be used to help make more people aware of the causes, signs and symptoms of mouth cancer so cases can both be prevented and caught early enough for effective intervention. Your support will also help us continue our drive to change behaviours which contribute to the majority of mouth cancer cases in the UK, such as minimum alcohol pricing and plain cigarette packaging. Your donations make a huge difference in helping us to save lives from mouth cancer. Without your support, Mouth Cancer Action Month would not be possible and you are the reason we are able to continue raising awareness of a disease that affects more and more people each year. You can be assured that your fundraising goes to exactly where you want it to. As a charity we are entirely open and honest with our intentions and show you what your fundraising goes towards.
How do I make a donation for Mouth Cancer Action? Expand You can send us your donations in various ways, whichever is most convenient for you. The safest and quickest way you can send us your money is online through our donations portal. Simply select which appeal you would like to donate to and enter the amount you have raised for us. You can also pay in your money offline too. If you have collected money through a sponsorship form or a fundraising event, you can either send us your card details via our donation form, or send us a cheque with our paying in slip. Both of these forms (links below) will guide you about where to send your donations. For your security, please do not send us cash in the post. Finally, you can issue a bank transfer. If you would like to do this, contact our team and we will guide you through this process. More information: Donate to the Oral Health Foundation Donate to our other causes Donation form Paying in slip Payroll giving
I want to fundraise for Mouth Cancer Action Month. What do I do? Expand Start by taking a look at our top fundraising ideas to help inspire you to get involved. If you’re not sure what you want to do, send us a message and we’ll be in touch to help you find the fundraising activity that’s perfect for you. If you're planning on doing a fundraising event during Mouth Cancer Action Month, why not arrange your event for Blue Wednesday? Once you have decided what you are doing and when, go to our create a fundraising page. This page will allow you to enter all your event details and share it with your friends and family so they can donate and support you. You can even upload photos and videos of your journey along the way! If you need anymore help, check out our planning your event page. We are also on hand to offer support and advice to help you achieve your fundraising goals. Simply contact our press team. More information: Create a fundraising page Planning your event Contact our press team
England (North) Expand Mid Yorkshire Warblers Head and Neck Cancer Group Helen Chadwick Ward 7, Pinderfields General Hospital, Aberford Road, Wakefield, West Yorkshire, WF1 4DG 01924 542544 SLC Laryngectomee Club Mr Bertrum Culling [email protected] / 0191 536 9655 Preston District Laryngectomy Association Kim Winterton 01257 453012 [email protected] www.prestonlarrys.weebly.com Heads Up Cancer Support Group Laura, Helen, Kate and Katie 07557 317225 07810 154880 01228 603978 [email protected]
England (South) Expand Head, Neck & Thyroid Clinical Nurse Specialists Poole General Hospital Claire Clark - [email protected] / 01202 442365 Karen Roberts [email protected] / 01202 442071 Changing Faces The Squire Centre, 33-37 University Street, London, WC1E 6JN [email protected] / 0845 4500 275 THANCS Group macmillan.org.uk [email protected] c/o Macmillan Horizon Centre 2 Bristol Gate Brighton BN2 5BN
England (East) Expand Headstart - Head and Neck Support www.headstartcancersupport.org.uk [email protected] Changes (Cancer Head and Neck Group Essex Support) www.changesessex.co.uk [email protected] Ipswich Head & Neck Cancer Support Group Rushmere Bowls Club (2nd Wednesday of the month) 136 Rushmere Road Ipswich IP4 4JU 01473 715748 Colchester Head & Neck Support Group The Cancer & Wellbeing Information Centre Colchester General Hospital Turner Road Colchester CO4 5JL www.colchestercancerinformation.co.uk Sally-Anne Philpott [email protected] 01206 286900 Head and Neck Cancer Support Group (HANC) 'Big C' Cancer Information Centre Norfolk & Norwich University Hospital Outside East Block Inpatients Department Astra Hall Norfolk and Norwich University Hospital outside the East Block Inpatients entrance. Astra Hall - Head & Neck Specialist Nurse [email protected] 01603 288198 Crokus Club Peterborough Head & Neck Cancer Support Group [email protected] www.headandneckcancersupport.co.uk Alan Stevens (Chairman) 07753 749170
England (West) Expand Cancer Information and Support Centre - Bristol Bristol Oncology Centre, Horfield Road, Bristol, BS2 8ED [email protected] / 0117 928 3369 Outlook & Clinical Health Psychology Office 3, Gate 38, Level 3 Brunel Building Southmead Hospital Southmead Road Westbury-on-Trym Bristol BS10 5NB 0117 414 4888 [email protected]
Northern Ireland Expand Craigavon Area Hospital 66 Lurgan Road Portadown Co Armagh BT63 5QQ www.southerntrust.hscni.net/service/macmillanhealthandwellbeing/ Northern Ireland Health Trusts There are 5 Health and Social Care (HSC) Trusts providing cancer services across Northern Ireland. For more information on cancer services and cancer support in your area, link to your Trust area below. Belfast Health & Social Care Trust Cancer Services Northern Health & Social Care Trust – Cancer Services South Eastern Health & Social Care Trust – Cancer Services Southern Health & Social Care Trust Western Health & Social Care Trust
Scotland Expand Heads Up Support Group Facebook Group Maggie's Glasgow Gartnavel General Hospital 1053 Great Western Road Glasgow GL2 0YN [email protected] 0141 357 2269 Speak Easy Cancer Support Group Ann Muir MBC - Chair 8 Moffat Court Blackwood Lanarkshire ML11 9YJ [email protected] / 01555 893 184 / 07788 735185 www.speakeasylaryngectomee.co.uk
Blue Wednesday Encourage people to do self-checks for mouth cancer on the 13th of November for Blue Wednesday. Expand Social Media Graphics Post these social graphics on your social media pages. Click on the images to open and save. Editing social media post images in any way without our permission is strictly prohibited. Should you edit these images before posting you will be asked to take it down. Please respect our mouth cancer ambassadors. Do One Thing This Wednesday Check Your Mouth What To Look For/Where To Look Where To Check Download all landscape photos Useful links: Digital downloads and resources The Blue Ribbon Appeal Make a donation to Mouth Cancer Action Month
Mouth Cancer Ambassadors Download these posters of our ambassadors to spread awareness of mouth cancer and the real-life impacts Expand Editing these images in any way without our permission is strictly prohibited. You will be asked to take it down if you edit these images before posting or displaying them. Please respect our mouth cancer ambassadors. Rachel Parson's Story Click on the image to open and save. Suwinder Singh's Story Click on the image to open and save Sinead Marland's Story Click on the image to open and save Joe Butler's Story Click on the image to open and save. Sarah Davies's Story Click on the image to open and save. Robert Powell's Story Click on the image to open and save.
Mouth Cancer Action Month campaign resources Help us raise awareness of November's campaign and why it is so important. Expand Purchase campaign posters and resources Order your posters from our dedicated shop website. Visit dentalhealthshop.org Social media posts Post these social graphics on your social media pages. To download, click on the button below and then click 'save image'. Editing social media post images in any way without our permission is strictly prohibited. Should you edit these images before posting you will be asked to take it down. Please respect our mouth cancer ambassadors. November is Mouth Cancer Action Month Click on the image to open and save. Speak out about mouth cancer Click on the image to open and save. Blue ribbon appeal Click on the image to open and save. Make a donation Click on the image to open and save. Download all landscape images November is Mouth Cancer Action Month Click on the image to open and save. Speak out about mouth cancer Click on the image to open and save. Blue ribbon appeal Click on the image to open and save. Make a donation Click on the image to open and save. Download all square images Useful links: Supporting Mouth Cancer Action Month The Blue Ribbon Appeal Make a donation to the Mouth Cancer Action Appeal
Mouth cancer signs & symptoms resources Posters and social media graphics raising awareness about the signs and symptoms of mouth cancer. Expand Signs & Symptoms Posters Order your posters from our dedicated shop website. Visit dentalhealthshop.org Social Media Graphics Post these social graphics on your social media pages. Editing social media post images in any way without our permission is strictly prohibited. Should you edit these images before posting you will be asked to take it down. Please respect our mouth cancer ambassadors. Are you mouthaware? Click on the image to open and save. A simple check can save your life Click on the image to open and save. If in doubt get checked out Click on the image to open and save. Are you mouthaware? Click on the image to open and save. A simple check can save your life Click on the image to open and save. If in doubt get checked out Click on the image to open and save. Useful links: Digital downloads and resources The Blue Ribbon Appeal Make a donation to Mouth Cancer Action Month
Mouth cancer risk factor resources Posters and social media graphics on the risk factors associated with mouth cancer. Expand Posters Order your posters from our dedicated shop website. Visit dentalhealthshop.org Social Media Graphics Post these social graphics on your social media pages. Editing social media post images in any way without our permission is strictly prohibited. Should you edit these images before posting you will be asked to take it down. Please respect our mouth cancer ambassadors. Alcohol and mouth cancer Click on the image to open and save. Smoking and mouth cancer Click on the image to open and save. HPV and mouth cancer Click on the image to open and save. Alcohol and mouth cancer Click on the image to open and save. Smoking and mouth cancer Click on the image to open and save. HPV and mouth cancer Click on the image to open and save. Useful links: Digital downloads and resources The Blue Ribbon Appeal Make a donation to Mouth Cancer Action Month
State of Mouth Cancer Report The latest mouth cancer statistics and trends. Download the report and social media graphics to share online. Expand State of Mouth Cancer UK Report 2022 Information about the campaign and how to support it, along with links to all downloadable resources. Download the State of Mouth Cancer UK Report 2022 Social Media Graphics Post these social graphics on your social media pages. Social post 1: The number of mouth cancer incidence Social post 2: The number of mouth cancer deaths Social post 3: The increase in mouth cancer cases (%) Social post 4: Where mouth cancer can appear Social post 5: Demographics Useful links: Digital downloads and resources The Blue Ribbon Appeal Make a donation to Mouth Cancer Action Month